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(UK) Mom of 2 boys with ASD/ADHD fought for services; over 2K kids waiting for help

Dec 11, 2018, South London Press and Mercury: Lewisham mother worn down by bureaucracy to get proper care for her autistic children https://www.londonnewsonline.co.uk/lewisham-mother-worn-down-by-bureaucracy-to-get-proper-care-for-her-autistic-children/ A mum of two boys with special needs says parents are being let down by the education system. Sally Edwards’ sons Oscar, 14, and Toby, 12, have autism and Attention Deficit Hyperactivity Disorder (ADHD). The Lewisham mother was worn down by the levels of bureaucracy involved in getting Education, Health and Care Plan (EHCP) grants for her children. Ms Edwards, 47, said: “I fought for so long to get an EHCP for Toby. I was trying to get him the one-to-one care he needs, but it didn’t happen. “I was so broken by the fight that I accepted what they gave me in the end. I didn’t have the fight in me to go a tribunal and had to compromise. “This happens to so many parents, who are let down by the system.” The Verdant Lane resident was speaking out after Ofsted published a report on Tuesday which labelled special needs provision education as “weak” – with children not meeting the assessment threshold suffering most…. He has anxiety and gets a bit OCD when he comes home. He’ll disappear upstairs when he comes home and then he’ll come down every five minutes to check the locks.” Sally volunteers to help parents get the right form of education. More than 4,000 children who were supposed to be on an EHCP were not receiving support in 2017, but that number has fallen to 2,060. An Ofsted spokeswoman said: “One child with SEND not receiving the help they need is disturbing enough, 2,060 is a national scandal.” …