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(Ireland) Parents of child with regressive autism find no help--start website

Nov 2, 2019, RSVP Live, Dublin: Irish parents set up autism support website to help others after son was diagnosed aged two One Irish couple were driven to set up an autism support website, after struggling to find the help they needed after their two year old son was diagnosed with Autism Spectrum Disorder (ASD). Dublin mum, Sarah reveals there were no warning signs anything was amiss with their son until he was 18 months. … However, at 18 months, they noticed their son starting to regress. “From 18 months to two, his words stopped and we started noticing things we were concerned about” she tells us. “He wasn’t responding to his name, he didn’t have much interest in toys and his eye contact wasn’t great.”… They brought their son to the public health nurse, who was not concerned assuring them that boys simply developed differently to girls. The worried parents questioned whether there could be a hearing issue, and were referred to have their son’s hearing checked, however with a long waiting list, they opted to have him checked privately. It was at this appointment the experienced audiologist agreed that their son showed signs of being on the autistic spectrum and reccomended they bring him to an early intervention centre to try and get a diagnosis. However, the couple were told the wait for an assessment would be 18 months, so once again they decided to try and find a private appointment for their son to be assessed, explaining: ‘We felt we couldn’t wait this long, for our sons development as he was 2 and a half by now.”… “It felt very surreal, it took us a bit of time to let it all sink in. We tried to focus on making sure we could get the entitlements he needed and the right supports, that at least gave us hope.” … Based on their own struggles to access the right information and support, the couple decided to set up a website where parents of children with Autism can go to find information. … And sharing her advice for other mums whose children have been diagnosed with autism, Sarah was keen to stress the importance of self care. “Look after yourself” she insists. … She also talks of the importance of remembering to just relax and have fun with your child too, and not to constantly focus on their ‘diagnosis’. “Don’t forget to just have fun with your child and just play as normal. …


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